• 1 Post
  • 71 Comments
Joined 1 year ago
cake
Cake day: October 4th, 2023

help-circle






  • I think others have covered the economies of scale and niche products creating the disparity.

    But I wanted to suggest that if your grandpa is regularly eating gluten free bread, we have found that making it at home is SO much more affordable than buying a loaf at the store. (Even though gluten free flour is also more expensive.) Most of the gluten free flours have their own sandwich bread recipe, either on the bag or their website. I don’t know what flours you have access to, but they can be wildly different blends, so using their tested recipes is always best.

    We’ve mastered our favorite so it takes only 15 minutes of “work” and then just time in the oven. It’s also much better than store bought! I don’t know if that’s possible for you, but it could be a lovely weekly ritual for you and your grandpa.

    Also, to anyone suggesting we just eat rice and beans, I’m an old celiac. We went without bread, pasta, cake, pastries, cookies, brownies, pizza, and crackers before these products came to market. These are mostly “fun” foods that I don’t eat regularly, but usually pop up in social situations. Do you know how many sad birthdays with no cake we’ve had? How often we’ve watched our friends and family eat things we could never have? I am so grateful to the “fad” gluten free people who made it possible to have culturally/socially important foods we were missing out on for decades!!



  • Our 15 year old has a new habit of coming into the kitchen every time we do, and stretching out directly in the middle of the walkway so he is in the way at all times. We have a pretty decent sized space, but he’s a very long cat when he wants to be. I feel like he defies the laws of physics because I don’t understand how he’s in the way literally everywhere. It makes me crazy.

    So when we cook, which is usually 2-3 times a day, it’s like, need to open the oven? Cat. Need to get into the fridge? Cat! Sink? Cat. Oh, I need to dry my hands? Cat. We have definitely stepped on him by accident since he started doing this, but he’s still undeterred. He has bad arthritis, so I don’t mind when he sits in front of the oven when it’s on, because at least that one makes sense. (He has multiple heated beds too; don’t feel bad for him.) But it’s like, I would love to be able to grab water from the kitchen or feed the dog or do literally anything in there without almost stepping on my cat.


  • What a tragedy. I hope they push out national changes so her death wasn’t a complete waste. Refusing a feeding tube is bananas.

    Here in the US, the discourse around ME/CFS is changing significantly now that doctors are constantly encountering long COVID and sequelae of other viral illnesses. (Another great example of this phenomenon is the sequelae like eye and joint problems among Ebola survivors, which didn’t exist as a patient cohort until 2015.) It’s unfortunate that so many people have long COVID, but the volume of patients is definitely shaking up how doctors are thinking about “mystery illnesses.” When millions of people are following a pattern, and the sample sizes are big enough to prove things, things change. I hope that MS/CFS sufferers benefit from all of this new research and training.