this post was submitted on 05 Sep 2024
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ADHD

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I recently had to stop taking my vyvanse due to some bad side effects and holy shit I forgot how bad this was. I can't do anything. I have so much shit I need to do but I sit down to do it and it genuinely fills me with dread. I am just staring at my computer. Even getting to the webpage I needed took hours of convincing. This is horrible, even caffeine isn't helping. What do y'all do? How do you manage?

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[–] Nemo@slrpnk.net 44 points 2 months ago

Honestly? Forty years of practice, anxiety spikes, external motivations positive and negative, fugue states... and I'm still barely getting by. I just paid $600 of late fees because I forgot to file my state income tax ten years ago. I'm sure I did them when I did my federal, I just... never sent it in? I guess???

[–] nokturne213@sopuli.xyz 34 points 2 months ago (1 children)

I have been raw dogging life without meds almost my entire life. There was a 2 year period in high school I did speed, and then when I went to community college my wife shared her meds with me. The other 40ish years have taught me how to deal.

I have alarms for everything throughout my day. I have a routine. I have specific places to put certain things. When I deviate I am screwed.

[–] pemptago@lemmy.ml 11 points 2 months ago (1 children)

Same. Lots of systems and a place for everything. EG if I leave the room and want to remember what I was doing when I got back, it'll be the one thing that's out of place and somewhere obvious. Unfortunately, it's easily thrown off by others who forget to put stuff back.

What's your relationship with travel? I struggle to pack up and mobilize so many systems. It's been getting better as I develop travel-specific solutions (like having a dedicated toiletries bag that remains packed).

[–] nokturne213@sopuli.xyz 8 points 2 months ago

If I travel alone I am okay. I list what I need to take with me. If I travel with my family, I am horrible and yell and scream at every little thing that goes wrong as we are leaving. Once traveling I am fine, it is the leaving that is the issue.

[–] PugJesus@lemmy.world 34 points 2 months ago* (last edited 2 months ago) (4 children)

Poorly. I'm unmedicated and trying to get on meds.

[–] Gormadt@lemmy.blahaj.zone 11 points 2 months ago (1 children)

I wish you the best of luck, it took me years to get the right diagnosis and then about 7 months to get the appointment with a doc to prescribe me some meds.

Hopefully your journey is smoother than mine was.

[–] PugJesus@lemmy.world 6 points 2 months ago

Thank you. It's... a bumpy ride, lol.

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[–] Gormadt@lemmy.blahaj.zone 30 points 2 months ago (1 children)

Before I was diagnosed?

Poorly, very poorly lol

It literally felt like I was try to fill a bucket with sand and the only shovel I had was a sieve.

I'd literally have to wake up 5-6 hours before I had to be anywhere just to make sure I could finish my breakfast and coffee before leaving. And then I'd still more often than not finish eating or drinking my coffee in the car on the way.

I feel you on the "Having to stop a med because of the side effects," before I was diagnosed with ADHD I was diagnosed with anxiety and I tried about a dozen different meds for it ovwr the years before calling that off and just going unmedicated. Funnily enough after my ADHD diagnosis and getting on the meds I am now (Straterra) I've only had 1 panic attack in the last year vs one a week or so. And I'm able to start and finish tasks. It's fucking witchcraft.

[–] sharkfucker420@lemmy.ml 7 points 2 months ago (1 children)

It literally felt like I was try to fill a bucket with sand and the only shovel I had was a sieve.

Couldn't have said it better tbh

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[–] Zorsith@lemmy.blahaj.zone 16 points 2 months ago

I don't. I vaguely function for months on end, eventually get overwhelmed and panicky, then consume excessive amounts of caffeine and giggle to myself till the caffeine crash hits and I'm too tired to think.

[–] Zilliah@lemmy.world 16 points 2 months ago

Routine, write down EVERYTHING (because anything verbal doesn't register for me), and struggle through it. I've been trying for years to find the right medication, I don't even know the name of the one I just had to stop due to severe insomnia and dizzy spells. Which has been the theme for every single one where the dizzy spells are so bad, it's no better than my scatterbrained ADHD brain. Yes, even Vyvanse made me very dizzy; I was so hopeful for that one..

[–] nifty@lemmy.world 15 points 2 months ago
[–] bionicjoey@lemmy.ca 14 points 2 months ago

I recently had to stop taking my vyvanse due to some bad side effects and holy shit I forgot how bad this was

FYI you are probably also dealing with withdrawal in addition to being unmedicated. Getting off of meds after having been on them is a very different experience from never having been medicated.

[–] Dearth@lemmy.world 14 points 2 months ago

I used to use caffeine but i stopped a few years ago. During the pandemic i went on adderall because i was struggling to help my kids do online school. I stopped adderall because i moved and adhd'd away my therapist.

Mostly i cope with routine. I eat the same foods for breakfast and lunch most days. I work on unmasking and being radically honest about my struggles with adhd to people around me. I setup auto billpay as much as possible and i cycle through the same few hobbies so i dont waste too much money.

I've recently found that sleep is very important to my body's needs. If my sleep cycle is fucked then my symptoms get wild.

[–] empireOfLove2@lemmy.dbzer0.com 13 points 2 months ago* (last edited 2 months ago) (2 children)

heart exploding levels of caffeine, just keep adding more it works eventually

(do not do this I had to survive college somehow and was desperate)

[–] general_kitten@sopuli.xyz 9 points 2 months ago* (last edited 2 months ago) (1 children)

caffeine tolerance increases very quickly, so one has to constantly increase the dose for it to be effective. I am currently trying to get a diagnosis after procrastinating for too long on that (why the hell does getting help to overcome my problems require me to overcome my problems). Not sure how caffeine exactly works in adhd brains but for me as how i understand it works in neurotypical also it should be possible to reverse the tolerance for caffeine by spending 2-5 days without any. Having gone through that i can say you need to be prepared to just lay in bed for that time.

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[–] sharkfucker420@lemmy.ml 5 points 2 months ago* (last edited 2 months ago)

Brother I am a physics student. I already am doing this. Just didn't have enough coffee today I guess

[–] AddLemmus@lemmy.ml 13 points 2 months ago (1 children)

Chaining dozens of coping methods together helps a little bit, including:

  • strictly working with lists. When I do it and it's not on the list & checked off, it doesn't count as done. What's not on the list doesn't get done
  • implementation intention: Since my brain refuses "must do now" situations, use a trigger like: "If it's not done by 8 p.m., work on it with a stopwatch for 15 minutes"
  • for the list, turn everything into a module. Instead of "do the kitchen", have subitems like "collect all garbage", "sort by food / non-food", "clean surface 1/2/3/floor". For studying & work, a module is always 25 or 50 minutes of full focus, no distractions. When I have to get up to get water or pee, it counts as failed and is not checked off

Yay, life on hard mode.

[–] DokPsy@infosec.pub 4 points 2 months ago (1 children)

Those are some top tier gamifications

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[–] Mac@mander.xyz 12 points 2 months ago

~~Shame~~ External motivation!
A friend stopped by yesterday and i havent cleaned so fast in such a long time. lmao
Im also preparing to invite a woman into my life and i am not able to do so if I'm a disaster. So i still have more cleaning to do but I've made progress!

[–] tiefling@lemmy.blahaj.zone 12 points 2 months ago* (last edited 2 months ago) (1 children)

THC, caffeine, and a little bit of alcohol

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[–] itchick2014@midwest.social 11 points 2 months ago (1 children)

Therapy? I react badly to all ADHD medications so I am not medicated for it. What has helped me the most is working through things with a therapist who also helped me with implementing coping mechanisms. Things like pomodoro method (this got me through college!), organizers at “drop spots,” and learning how to self talk made a huge difference for me. It is not impossible to do well without meds…it is just harder.

[–] sharkfucker420@lemmy.ml 5 points 2 months ago

I am starting therapy on the 10th lol

[–] mynamesnotrick@lemmy.zip 10 points 2 months ago

Drink an abhorrent amount of caffeine.

[–] Klanky@sopuli.xyz 10 points 2 months ago

My wife is desperately trying to find out what medication will work for her…

[–] Nosavingthrow@lemmy.world 9 points 2 months ago

I run on auto pilot most of the time. I can't forget something I didn't remember to do to begin with. Double, triple, and quadruple check. The double check to be sure and the tripe and quadruple check because I forgot I've already double-checked.

[–] CannedCairn@lemmy.world 8 points 2 months ago

Caffeine, lots.

[–] kerrigan778@lemmy.world 7 points 2 months ago* (last edited 2 months ago) (3 children)

As someone who can't medicate my ADHD, even with caffeine because they all either don't help or interfere with my panic disorder which is much, much more debilitating, it is... Not great, but I've mostly found a lifestyle that works for me. I've found careers that I can handle. Maintaining a household alone is... Very rough under the circumstances but it is what it is.

All that said, HIGHLY recommend staying active enough that you are tired at the end of the day and having an alarm clock with a bright light on it, or a dawn simulation ideally with smart lighting, a special alarm clock, or a diy solution with a full spectrum lamp and an aquarium timer (guess which one I did during college). Maintaining a good schedule and waking up in the AM feeling at least reasonably well rested is paramount, everything else goes to hell if that isn't maintained, and if I'm not physically active during the day, no amount of melatonin will get me to sleep within a routine.

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[–] Takeshidude@lemmy.world 7 points 2 months ago
[–] atrielienz@lemmy.world 6 points 2 months ago

I suppose I cope by having almost 40 years of coping mechanisms that I use to keep me mostly okay. I let my mind fugue in the morning when I wake up. I have a routine that I try to stick to. I have a job that allows me to hyper focus on problems and get the dopamine hit from solving those problems. I don't have to interact with others for the most part to do my job. I spend a lot of time at home, use ear plugs, or headphones etc. if I can't make my mind focus I try to do something else. I take breaks. I set alarms for just about everything. And reminders. So many reminders. I also have a very supportive partner. I'm sure there's other stuff I had to learn to do to mask that I'm forgetting. But for the most part things just work because I put a lot of work into making them work and even then I am not always successful.

[–] nick@midwest.social 6 points 2 months ago (1 children)

May I ask what side effects? I’m on vyvanse 40/d and love it.

[–] sharkfucker420@lemmy.ml 9 points 2 months ago (9 children)

Its a bit embarassing lol but I guess its fine. I was one 70mg and noticed somwtimes it'd be hard to pee, like I really had to strain and all I got was a week stream that cut in and out sometimes. For a few months I said fuck it I guess its a shitty side effect I will have to deal with being at such a high dose so I just ignored it and went on with life. Then a few days ago I felt some pelvic pressure around the bladder and began to leak semen. Like just a dribble but definitely not something I want and the pelvic pressure was pretty uncomfortable. This all occured around the peak of the meds. My guess rn is that I have an underlying issue with my prostate that is exacerbated by these meds for one reason or another. I also lost a 6-10 lbs over the summer (pounds I needed tbh I don't weigh a ton) which might also have something to do with it.

[–] nick@midwest.social 7 points 2 months ago (1 children)

Damn brother, sorry to hear that. When I was on straterra I had some similar issues. Leaked semen, and a couple of times right after I started taking it there was blood in the semen (???). It was not a good medication for me, but many people do well on it.

Wishing you the best in finding something you replace it.

[–] degen@midwest.social 5 points 2 months ago

This was my experience with the generic atomoxetine as well, but without the blood which would definitely freak me out. That, wild constipation, heart palpitations, and somehow more brain fog. The dependency warnings with stimulants worries me, but I just started on 40 Vyvanse after testing 20. Fingers crossed.

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[–] MagicShel@programming.dev 6 points 2 months ago (1 children)

I was on vyvanse for years. And I slept about probably 4 hours a night on average. I had to go to adderall. It doesn't work as well, but it does work, and usually I can sleep.

I should never be off meds.

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[–] Maeve@kbin.earth 6 points 2 months ago (2 children)

Side note: too much caffeine can weaken bones.

[–] Zorsith@lemmy.blahaj.zone 6 points 2 months ago (1 children)

Well, fuck. My joints are shit to begin with.

[–] Maeve@kbin.earth 4 points 2 months ago (1 children)
[–] Zorsith@lemmy.blahaj.zone 5 points 2 months ago* (last edited 2 months ago) (2 children)

The most normal movements can be painful for no apparent reason, my knees sometimes try to bend the wrong direction while I walk, sneezing too hard can make everything ache painfully for a good 30 minutes or more, etc.

I can move my calves up and down and feel my knees "scrape" together as they move.

Lovely family history of degenerative bone and muscle issues, as well as just plain ol pain.

[–] Maeve@kbin.earth 4 points 2 months ago (1 children)

Oh jeez, so sorry! Do you have any working diagnoses where you can search up anything? Regular osteoarthritis is helped by actually using the joints, so they produce more synovial fluids, but I didn't know if it can help your condition.

In a sane nation, universal health would be a no brainer.

[–] Zorsith@lemmy.blahaj.zone 4 points 2 months ago (1 children)

That would require my family to not be extremely tight-lipped about their medical history for no apparent reason. I know nothing beyond general descriptions and a few common names of conditions to watch put for (diabetes, heart, blood pressure, "endocrine issues") despite explicitly asking for purposes of testing with a doctor. That and I haven't been to a PCP since I was in high school (maybe longer). I'll get there... eventually.

Oh, and im fat; not like, mobility scooter stereotype, but i could stand to lose a good 40-50 pounds. Legs and arms are actually fairly muscular, its all torso.

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[–] lady_maria@lemmy.world 6 points 2 months ago (1 children)
[–] Maeve@kbin.earth 8 points 2 months ago (1 children)

Under fifty, maybe 800+ mg daily. Over 50, maybe 200, depending on other risk factors. Oddly, it seems to affect the femoral shaft, and not notably others. Everyone should do a refresher on Rush factors, but especially AFAB, and small framed people.

[–] apfelwoiSchoppen@lemmy.world 8 points 2 months ago (1 children)

Over 400 mg is bad for your heart.

[–] Maeve@kbin.earth 6 points 2 months ago

It's not great for the kidneys either, but I'm not sure the meds are great, either. Probably the best way is the slowest and requires more willpower: cut out refined sugars (that includes in breads, mayo and other stuff), switch from refined grains to whole, watch seed oils, increase Omega 3s, regular exercise, good sleep habits, etc. These things can be incorporated incrementally, but the sooner the better. Also meditation and therapy, the latter being cost prohibitive, for many.

[–] OutsizedWalrus@lemmy.world 6 points 2 months ago (1 children)

I find that pre-workout mixes with caffeine and creatine tend to help me.

Just worth noting, creatine causes your muscles “soak up” more water so you’ll need to drink more to keep the rest of your body hydrated.

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[–] Bluefruit@lemmy.world 5 points 2 months ago

Before i even knew i had it, caffeine. One cup of coffee and maybe a soda per day. No more or otherwise it'd make me tired. Its no replacement for meds but other things helped too like keeping notes, getting enough sleep, excerising, and one of the things i still do today, taking the frustration out of daily tasks.

If something bugs you a lot or stops you from being productive, find a way to make it easier or at least less annoying. Problem solve. Its one of my biggest drivers for dopamine hits and making your life easier by just getting rid of little annoyances makes it easier to function overall.

All that said, like others mentioned, I didn't function well before meds. Honestly i feel like i got off easy but its not really helpful to compare your situation to others.

I hope anything from this post helps you out man.

[–] Forester@yiffit.net 4 points 2 months ago* (last edited 2 months ago) (1 children)

THC nicotine caffeine

Set reasonable goals they are easier to accomplish

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