• Kiloee@discuss.tchncs.de
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    1 year ago

    This sounds great in a bubble where it works.

    Over here there is no standardised way of sharing such info between doctors/hospital/care givers. I have been through multiple GPs because some stopped working, some where to far away after a move and so on. I had to bring my data to them and good luck to me if I hadn’t gotten a copy of something when it happened. I had to stop medical personnel from giving me paracetamol (I have asthma and shouldn’t take any of that or anything like aspirin), the GP of my SO had to basically partly roll back a medication plan he had gotten from the hospital after being in the ER and those are mild cases where nothing did actually go horribly wrong. My SO got two incompatible medications about two years ago because the tool that crosschecks the database did not throw the relevant warning correctly. It messed with his brain chemistry a lot. His GP wrote the programs makers to have them remedy that asap, since it was pretty bad.

    I actually use the health app medication reminder/tracking now and have seen that the app can theoretically store data from health professionals about me. It looks like it is completely unused in the country I am in and I can’t manually add in data at all. This would be super helpful in some cases where I could use it to quickly convey key points about my health, especially when I am not as present (high fever, accident or some such).

      • Kiloee@discuss.tchncs.de
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        1 year ago

        I am across the pond from you and as far as my knowledge goes laws are even more strict here.

        I am not a medical professional, but I did accounting for a lot of them and from what I have seen them pay for the relevant authentication hardware and software it seems to be nightmarish to navigate.

        While I am very pro data security and people being the owners of their own data, this goes the other way for me too. I own the data about my health, so I should be able to decide that I am fine with having it on my phone.

        The medication rollback I mentioned would have been completely unnecessary if that option existed. It was Ibuprofen, which my SO shouldn’t due to an already stressed kidney. Now that I know that I can look out for it too, provided I am allowed to go with.

        • Aesculapius@kbin.social
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          1 year ago

          One of the issues you are touching on is what we refer to as Medication Reconciliation. At least in the US, the standard of care is to verify the current medications a patient is taking at every visit - whether it be an office visit, ED visit, or a hospitalization. Our local pharmacies also play a part in checking for medication interaction. This does not extend to over the counter medications however.

          The US is the same in that the patient owns their own information. However, private entities are charged with the responsibility with holding and securing that data. Unfortunately, there is no central repository for it here.

          More advanced systems in the US do allow for data access via phone. But it is not uniformly available or applied.